Deondra Dixon Include Project Act of 2025

The House considered H.R. 3491, the DeOndra Dixon INCLUDE Project Act of 2025, which gives permanent legal authority to an existing National Institutes of Health program that researches Down syndrome and related health conditions, with reports to Congress every two years. Members moved to pass the bill under suspension of the rules. Supporters from both parties, including Representatives Guthrie, DeGette, Tonko, and Evans, said the bill continues research begun in 2018 that could improve lives of people with Down syndrome and shed light on conditions like Alzheimer’s, heart disease, and cancer. Evans also said federal spending on Down syndrome research has been insufficient. No opposing arguments were recorded in the sampled statements.Written by AI from the debate. Updated .

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2 statements

Diana DeGette, CO

Democrat
“I want the House to pass this bill. It protects and continues federal research on Down syndrome. This work will help people with Down syndrome and also help us better understand diseases like Alzheimer's, heart disease, and cancer.”
Official Congressional Record

Mr. Speaker, I yield myself such time as I may consume. Mr. Speaker, my bill with Representative Hudson, the DeOndra Dixon INCLUDE Project Act, codifies the renaissance in Down syndrome research at NIH that was kicked off when the INCLUDE Project began in 2018. This bill sustains and encourages this critical research. After being left behind by NIH for nearly 20 years, the Down syndrome community is finally seeing research advancements that will extend and improve their lives. What we learn from this research will not only help us better understand Down syndrome but also heart disease, Alzheimer’s, cancer, and many co-occurring conditions. I am so proud that much of this work is happening right in my home district of Denver, Colorado. The Crnic Institute for Down syndrome on the Anschutz Medical Campus leads more than 200 scientists at the largest Down syndrome research facility in the world. They see incredible breakthroughs every day. This type of innovation puts science first and benefits not only individuals living with Down syndrome and their families but every single one of us because we are learning more and more about disease biology and just why some conditions work differently in people with Down syndrome. It is why the bill passed the House last Congress with unanimous support. I am so happy that I was able to work for many years with my friend, the former chair of the Energy and Commerce Committee, Cathy McMorris Rodgers, on this bill in the last Congress. I know it is a labor of love and deeply personal for her family and every family that has been touched by Down syndrome. It has been an honor to also work with my constituent, Michelle Sie Whitten, the president of the Quincy Jones Exceptional Advocacy Award, a driving force for this bill, and a fierce advocate for her daughter and everyone with Down syndrome. It has also been an honor to work with my friend and colleague Representative Hudson, whose dedication to the Down syndrome community has been essential to push this bill closer to the finish line. I simply could not have had a better partner on this issue. The INCLUDE Project Act will ensure that critical Down syndrome research continues to advance. This year, it must finally be enacted into law. I urge my colleagues to join Representative Hudson and me to support the bill, and I reserve the balance of my time.

Paul Tonko, NY

Democrat
“I support this bill. It keeps funding research on Down syndrome and related health issues to improve the lives of people with the condition.”
Official Congressional Record

Mr. Speaker, I thank my colleague from Colorado for yielding. I rise in strong support of the DeOndra Dixon INCLUDE Project Act and applaud my colleagues, Representative Diana DeGette and Richard Hudson, for championing this critical piece of legislation. The DeOndra Dixon INCLUDE Project Act will help ensure the NIH INCLUDE Project continues advancing research that improves health outcomes, expands scientific understanding, and enhances quality of life for individuals with Down syndrome and their families. This legislation builds upon one of our Nation’s most successful investments in Down syndrome research. Already, these investments have led to major breakthroughs in how Down syndrome interacts with other health conditions that have a high incidence in the community, such as immune system disorders, cancer, Alzheimer’s, and more. Every one of these breakthroughs carries the hope for a brighter tomorrow for individuals living with Down syndrome. I would also like to recognize that this progress doesn’t happen without sustained advocacy. In particular, I would like to highlight the role of the Quincy Jones Exceptional Advocacy Award and its founder, Michelle Sie Whitten, for their tireless advocacy to make this happen today. I again thank our co-leads, Representatives DeGette and Hudson, for their outstanding leadership. I look forward to supporting this measure on the House floor.

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